Imagine your child is dying. There’s a drug that promises hope, promises to stop your baby’s illness dead in its tracks. But this dream medicine is out of reach because it costs around $ 2 million, depending where you live. This is the story of many of parents of children with Spinal Muscular Atrophy (SMA), a rare motor neuron disease. Between one in 6,000… Read More »
Courtesy of Akron Children’s Hospital Crossing the finish line of your first marathon is a major moment for any runner. But for 33-year-old Kolt Codner, the significance of completing 26.2 miles went beyond himself. Codner ran a marathon to honor Andrew, his four-year-old son who was diagnosed with cancer earlier this year. In the process,… Read More »
Powerful, illuminating and sobering—that’s the description from a research group summing up its initial listening sessions with front-line workers and minority groups about a vaccine. Tasked with tapping key audiences to learn their questions and concerns about a COVID-19 vaccine—and determine how the FDA might best respond—the nonprofit Reagan-Udall Foundation for the FDA is currently in listening mode on… Read More »